Spørg eksperter

Irregular Menstruation

 
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Spørgsmål

Our daughter's periods can be regular, but she can go over 70 days between. This often causes her great stress or pain (we're not sure) and she has uncontrollable behaviors such as bad self-injury and contortion-like movements. We have Lorazepam for her use during these crises. We give her an absolute minimum but are terrified she will become addicted. We are reluctant to give her yet more drugs but wonder if the pill might help. Our GP is against it. Our daughter cannot tell us of any side effects.

Svar fra vores eksperter

We certainly have seen irregular menstrual periods in females with CdLS, although we do not know why. Hormone studies and other work-ups have not yet been performed on a number of women with CdLS. It sounds as if you are describing some symptoms related to pre-menstrual syndrome, with pain and cramping and behavioral changes that many other families have reported

There are several options in terms of treatment. Hormone replacement therapy is the best and likely safest option. This could be the pill, giving as low a dose of estrogen as well as progesterone (all in one pill), which will regulate her periods better. You could also use a Depoprovera shot (progesterone only) that also regulates the periods, and often causes them to stop altogether; the shot is given every 3 to 4 months. I think in her case using the pill to initially regulate the periods would be the best option. Her doctor will have to monitor her blood pressure

We've had many, many families whose daughters have been on the pill

TK 7-13-10

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Find andre sidder der deles de sammen emne som den side Growth in Childhood 15 Can individuals with CdLS have children? 13 Cognitive and behavioural characteristics in CdLS 1 Cognitive and behavioural characteristics in CdLS 9

Anbefaling(er)

Can individuals with CdLS have children?

R20
Sexual education appropriate to the level of understanding should be offered, and contraception management should follow local standard for the general population.
R21
Hysterectomy is indicated if abnormally heavy bleeding at menstruation is present and does not respond to medical treatment.

Hvileansvar

 

Bemærk venligst, at Spørg eksperterne-tjenesten består af frivillige fagfolk inden for forskellige områder. Svarene betragtes ikke som en medicinsk, adfærdsmæssig eller pædagogisk konsultation. Spørg eksperten er ikke en erstatning for den pleje og opmærksomhed, som dit barns personlige læge, psykolog, uddannelseskonsulent eller socialrådgiver kan yde.

 

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