Comunidades participantes
The WaihonaPedia platform belongs to the 'participants', the organisations that represent people around a disease. The real 'patients'. The platform is completely independent from professional (healthcare) organisations and the participants determine what information can be found there.
The platform is in no way 'commercial' and information remains at all times the property of the 'author'. We do NOT share information with third parties, an individual family can decide that about their own information.
Partners for WaihonaPedia
- Amsterdam University Medical Centre; Centre of Expertise (AECO) amongst others.; Pitt-Hopkins, Marshall-Smith-, Rubinstein-Taybi- and Cornelia de Lange-syndrome
- Stichting WaihonaPedia
Última modificación por Gerritjan Koekkoek el 2024/08/15 17:40
Creado por Gerritjan Koekkoek el 2021/07/07 14:15
