European Federation of Williams Syndrome (FEWS)
- Spread knowledge and awareness of Williams syndrome.
- Continuing to develop active working relationships with other rare disease organisations
mission
The sharing and translation of relevant publications and guidance materials into the languages of member associations
European Federation of Williams Syndrome (FEWS)
European Federation of Williams Syndrome (FEWS)
European Federation of Williams Syndrome (FEWS)
Our ways of working
Each of our member associations supports FEWS by:
- Participating in FEWS meetings, including by bringing ideas, experiences and ensuring timely follow-up on actions
- Arranging for timely decisions to be taken by individual member associations where these are required to ratify a decision or recommendation taken by the FEWS board
- Sharing resources across the network to avoid duplication of effort or cost, with a particular emphasis on making resources of the larger, more established associations available to the smaller associations
- Paying annual membership fees promptly which are tiered depending on the financial standing of each member organization
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ondersteuning
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