Information
Our information is written for and by people around Angelman Syndrome, so we know what we are talking about. We search for information, rewrite them to be understandable and share them. And share relevant news about Angelman Syndrome by readable articles. In this way we want to inform families, make the feel empowered to educate the cure- and care-people or give them just that little bit of support.
Because if there is something important for families with a care-intensive person like Angelman Syndrome, it is that the family remain upright. And that is what we, as community around Angelman Syndrome, are committed to doing with heart and soul.
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Angelman syndrome is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.
