Information

Information


Our information is written for and by people around Nicolaides–Baraitser syndrome, so we know what we are talking about. We search for information, rewrite them to be understandable and share them. And share relevant news about Nicolaides–Baraitser syndrome by readable articles. In this way we want to inform families, make the feel empowered to educate the cure- and care-people or give them just that little bit of support.

Because if there is something important for families with a care-intensive person like Nicolaides–Baraitser syndrome, it is that the family remain upright. And that is what we, as community around Nicolaides–Baraitser syndrome, are committed to doing with heart and soul.

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