Expertise network
Welcome to the expertise network for Angelman Syndrome. Because Angelman Syndrome is a very complicated disorder, families around Angelman Syndrome have searched and found centre's of expertise together with the formally recognized expertise centre. This network can help your local doctors, day-care centre's, schools and therapeutists to deliver the right care, close to home.
Our information as basis
The experts within this Angelman Syndrome network work together to provide the best possible information about Angelman Syndrome on this website. They are also motivated to read your stories and answer your questions to learn more about Angelman Syndrome. This website is therefore a tool for healthcare provider, healthcare insurer and your family.
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Angelman syndrome is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.
Network of expertise
Team
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