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Weight gain and CdLS

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Question

Do individuals with CdLS gain weight in a regular basis?

Answer of our experts

It is very difficult for children with CdLS to gain weight quickly. Obviously, minimizing gastroesophageal reflux will help. They really gain weight at their own pace. Maximizing calories can be tried (but I do not think it always helps) through the help of a nutritionist. At the infancy stage it can be done through high-calorie formula. Probably, only with time will the weight add up. Some families will feed at night to get more calories in, but again I don't think overall it helps too much.

TK 7-13-10

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Growth in Childhood

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The growth of every child with CdLS should be monitored by using CdLS-specific growth charts.

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