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Ptosis Surgery (Blepharitis, Sties)

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Question

What is the success rate for ptosis surgery in children with CdLS? Our son had an eyelash rotation surgery that failed due to the wrong procedure being performed. He is also susceptible to blepharitis and sties. His ptosis is severe and his eyelashes hang down. He compensates by tilting head back and sideways. He is resistant to eye drops. Do you think he would be a candidate for surgery?

Answer of our experts

  1. The success of surgery depends on the experience of the surgeon, the procedure selected, age of the child, prior lid surgery, and the amount of ptosis. In general though the procedure works well although repeat operations may need to be done

2. Your description does sound like your child is a good candidate for surgery. A tendency for blepharitis or sties is very common in CdLS and is not a reason to not have surgery. But surgery should not be done when there are active sties

3. Sometimes, eyelash problems can be fixed at the time of ptosis surgery

AL/TK 7-13-10

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Recommendation(s)

The eyes and the visual system

R36
Surgical correction of ptosis should be considered if vision is significantly affected or if the individual is lifting their chin in attempt to see more clearly and it is affecting the individual’s ability to move around.
R37
Blepharitis in individuals with CdLS should be treated conservatively with lid hygiene. Nasolacrimal duct obstruction (blocked tear ducts) should be suspected if symptoms are not improved with lid hygiene.
R38
Vision should be regularly evaluated in all individuals with CdLS, especially in infancy and childhood. Problems with vision should be corrected early to prevent amblyopia (lazy eye), although children may have difficulty tolerating glasses or contact lenses.

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