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Ptosis surgery
Question
My daughter is a candidate to have surgery for her ptosis. Do people with CdLS have a better quality of life if this surgery is done? What are the side effects?
Answer of our experts
Ptosis surgery is necessary for any of the following reasons:
If it is impairing visual development by locking the pupil
If it is causing your child to lift her chin significantly to see straight ahead
If you would like to normalize her appearance
Without examining her it is difficult to know if she fits into category 1 or 2. Only you can determine if she is in #3
AL/TK 7-13-10
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Recommendation(s)
The eyes and the visual system
R36
Surgical correction of ptosis should be considered if vision is significantly affected or if the individual is lifting their chin in attempt to see more clearly and it is affecting the individual’s ability to move around.
R37
Blepharitis in individuals with CdLS should be treated conservatively with lid hygiene. Nasolacrimal duct obstruction (blocked tear ducts) should be suspected if symptoms are not improved with lid hygiene.
R38
Vision should be regularly evaluated in all individuals with CdLS, especially in infancy and childhood. Problems with vision should be corrected early to prevent amblyopia (lazy eye), although children may have difficulty tolerating glasses or contact lenses.
