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Duration of Ear Tubes

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Question

Do children with CdLS need ear tubes for life?

Answer of our experts

Children with CdLS typically do not have normal eustachian tube and middle ear function. They often need tubes for many years, not uncommonly until puberty. Some require them even longer. So, the need for 4 or 5 sets of tubes is not unusual. It is important to keep the ear free of fluid in order to optimize hearing and prevent the development of additional middle ear problems.

RS/TK 7-13-10

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Recommendation(s)

Ears and hearing

R39
Hearing should be assessed in individuals with CdLS at an early age and should be followed up over time. Those with severe sensorineural hearing loss should be assessed for auditory neuropathy.
R40
Regular eye (ophthalmologic) and ear, nose and throat (otolaryngologic) evaluations are recommended in adults with CdLS.
R41
Otitis media (middle ear infections) with fluid build up and sinusitis in individuals with CdLS should be considered and treated according to the national guidelines for the general population.

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