Behavior/Dental/Molars
Question
My son has been self injuring himself for the last six months by biting through his lips and fingers. He had an endoscopy and an upper GI. Both tests came back normal. However, my son also has his two 6-year molars coming in. They were not noticed until four months ago because of the problem of him not opening his mouth. Could this be the problem for the behavior?
Answer of our experts
Recommendation(s)
Feeding and Dental Difficulties
R12
In every CdLS individual with prolonged and marked feeding difficulties, the multidisciplinary assessment (from healthcare workers across many disciplines) should consider (temporary) placement of a gastrostomy (surgical opening through the abdomen into the stomach) as a supplement to oral feeding.
R13
In individuals with CdLS who have recurrent respiratory infections, reflux and/or aspiration (breathing foreign objects into airways) should be ruled out.
R14
The palate should be closely examined at diagnosis. In case of symptoms of a (submucous) cleft palate, referral for specialist assessment is indicated.
R15
Dental assessment and cleaning should take place regularly; a more thorough dental examination or treatment under anaesthesia may be necessary.
Recommendation(s)
Self-injurious and aggressive behaviour
R54
To identify the cause of self-injurious behaviour in individuals with CdLS, medical assessment, specifically looking for sources of pain, should be followed by behavioural assessment of self-restraint then functional analysis.
R55
Treatment of self-injurious behaviour should include both medical and behavioural strategies.