Community

Why should you sign up?

We are all involved with someone with  Diagnose-overstijgend
Malan syndrome ( ALGEMEEN
MALAN) for different reasons; we have it, we are parents, siblings, we are families or friends, we care for someone with  ALGEMEEN
MALAN, we are doctors, we are teachers, we are curious. ..

And because we are, we understand the importance of sharing our experiences and knowledge!

You too have something to share, maybe just to let you know you are 'involved' ... but by seeing (reading), talking (writing), learning and sharing again we will make life with  ALGEMEEN
MALAN more beautiful, that's our dream.

So join our community, it's free and commits you to nothing!

WaihonaPedia for families

1

Your Story

Tell us your story. Sharing stories helps families feel supported and creates a sense of community. Your story is important for all of us!
2

Discover

Discover a community of like-minded people and find support along your quest. Otherwise, start a community of your own - we'll help you. Either way, you are not alone!
3

Join

Become an active member of your community. Share, discuss, ask questions and contribute. Everyone knows something, together we know everything!
Member!

Support our work

With your one-time donation, you will contribute to the advocacy of persons with RTS. We are very grateful to you for this!

You can also opt for a donor membership of the Rubinstein-Taybi Syndrome Foundation. You will then receive the beautiful glossy EnzovooRTS twice a year and you are welcome to attend the information and family days of the RTS Foundation.

Support us by your donation!