Spørg vores eksperter
Disse spørgsmål og svar er indsamlet for og af mennesker med Marshall-Smith syndrome (MSS) og professionelle eksperter omkring MSS))
På den måde mener vi at være en nyttig ressource for dem, der er berørt af MSS i deres søgen efter svar. Sjældne, men stærke sammen!
The Marshall-Smith syndrome (MSS) is a very infrequently described syndrome. The syndrome has been described for the first time in 1971. Since then, about 50 children and adults with the syndrome are known in the medical literature worldwide.
- Voks din viden
- What is the Marshall-Smith Syndrome?
- What are the symptoms?
- What can you expect?
- What causes the Syndrome?
- How is your child diagnosed?
- Which tests and treatments are available
- How does it affect daily life?
- What does it mean for you as a carer?
- As parents/carers, what can you do yourself?
- How is care organized?
