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Estas preguntas y respuestas han sido recopiladas por y para personas con Marshall-Smith syndrome (MSS)) y expertos profesionales en torno a MSS
Con ello, creemos ser un recurso útil para los afectados por MSS en su búsqueda de respuestas. Raros, ¡pero fuertes juntos!
The Marshall-Smith syndrome (MSS) is a very infrequently described syndrome. The syndrome has been described for the first time in 1971. Since then, about 50 children and adults with the syndrome are known in the medical literature worldwide.
- profundiza tu conocimiento
- What is the Marshall-Smith Syndrome?
- What are the symptoms?
- What can you expect?
- What causes the Syndrome?
- How is your child diagnosed?
- Which tests and treatments are available
- How does it affect daily life?
- What does it mean for you as a carer?
- As parents/carers, what can you do yourself?
- How is care organized?
