Ask our experts
Queste domande e risposte sono raccolte per e da persone con Marshall-Smith syndrome (MSS) e da esperti professionisti intorno a MSS.
In questo modo, crediamo di poter essere una risorsa utile per le persone affette da MSS nella loro ricerca di risposte. Rari, ma forti insieme!
The Marshall-Smith syndrome (MSS) is a very infrequently described syndrome. The syndrome has been described for the first time in 1971. Since then, about 50 children and adults with the syndrome are known in the medical literature worldwide.
- approfondire la tua conoscenza
- What is the Marshall-Smith Syndrome?
- What are the symptoms?
- What can you expect?
- What causes the Syndrome?
- How is your child diagnosed?
- Which tests and treatments are available
- How does it affect daily life?
- What does it mean for you as a carer?
- As parents/carers, what can you do yourself?
- How is care organized?
