Expertise network
Welcome to the expertise network for Pitt-Hopkins syndrome. Because Pitt-Hopkins syndrome is a very complicated disorder, families around Pitt-Hopkins syndrome have searched and found centre's of expertise together with the formally recognized expertise centre. This network can help your local doctors, day-care centre's, schools and therapeutists to deliver the right care, close to home.
Our information as basis
The experts within this Pitt-Hopkins syndrome network work together to provide the best possible information about Pitt-Hopkins syndrome on this website. They are also motivated to read your stories and answer your questions to learn more about Pitt-Hopkins syndrome. This website is therefore a tool for healthcare provider, healthcare insurer and your family.
Pitt-Hopkins syndrome (PTHS) is a rare genetic disorder. Many people have never heard of it before. It poses different physical, cognitive and medical challenges.
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Zespół
Dr. Leonie Menke
Dr. Sylvia Huisman
