Expertise network
Welcome to the expertise network for Tubereuze Sclerose Complex. Because Tubereuze Sclerose Complex is a very complicated disorder, families around Tubereuze Sclerose Complex have searched and found centre's of expertise together with the formally recognized expertise centre. This network can help your local doctors, day-care centre's, schools and therapeutists to deliver the right care, close to home.
Our information as basis
The experts within this Tubereuze Sclerose Complex network work together to provide the best possible information about Tubereuze Sclerose Complex on this website. They are also motivated to read your stories and answer your questions to learn more about Tubereuze Sclerose Complex. This website is therefore a tool for healthcare provider, healthcare insurer and your family.
Tubereuze Sclerosis Complex, ook wel de ziekte van Bourneville genoemd, is een erfelijke ziekte, die gepaard kan gaan met afwijkingen van de huid, de hersenen, de nieren en andere organen. In Nederland zijn er ongeveer 2000 patiënten met Tubereuze Sclerosis.
Network of expertise
