Overview of expertise

Welcome to the expertise network for a rare condition. Because a rare condition is a very complicated disorder, families around a rare condition have searched and found centre's of expertise together with the formally recognized expertise centre. This network can help your local doctors, day-care centre's, schools and therapeutists to deliver the right care, close to home.

Our information as basis

The experts within this a rare condition network work together to provide the best possible information about a rare condition on this website. They are also motivated to read your stories and answer your questions to learn more about a rare condition. This website is therefore a tool for healthcare provider, healthcare insurer and your family.

About the website contents


All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: wiki@waihonapedia.org