Selfstudy by Questionnaires and Scorecards
Nobody with Tubereuze Sclerose Complex is the same! It is important to understand how healthy you are and who you are! Our community provides questionnaires and scorecards that help you to discover how Tubereuze Sclerose Complex has impacted your life, how you develop.
When you discover which aspects of Tubereuze Sclerose Complex impact your life, we will provide links to fitting information to allow you to develop your personal health system. This saves you from digesting information you do not need directly, keeping your head free, to allow you to enjoy life and give you just that little bit of extra support.
Because if there is something typical for families with a care-intensive person having Tubereuze Sclerose Complex, is that you will see similarities with others having Tubereuze Sclerose Complex, but that you will also see where you are special. Finding your friend that really matches your lifestyle, has dealt with the same challenges can be improved by finding these people with Tubereuze Sclerose Complex that have approximately provided the same answers to our questionnaires and have similar scorecards.
Tubereuze Sclerosis Complex, ook wel de ziekte van Bourneville genoemd, is een erfelijke ziekte, die gepaard kan gaan met afwijkingen van de huid, de hersenen, de nieren en andere organen. In Nederland zijn er ongeveer 2000 patiënten met Tubereuze Sclerosis.
