Our conditions

Welcome on our place especially for care-intensive people.
WaihonaPedia responds to the needs of rare 'care-intensive people’ and their families, caregivers, teachers, doctors and therapists. These needs are;

• personalized information based on best available information and experiences of others,
• connection,
• asking questions and getting answers
• plan for the best possible quality of life

We do this by supporting international communities for these people. Explore the communities that already joined below to ho you can see and learn, know and share together with one of our communities. Can't find the community you're looking for? Request this to be supported

• waihonaSyndromes.3q29 true 
• waihonaSyndromes.notSpecified.WebHome true waihonaSyndromes.notSpecified.library.WebHome
• waihonaSyndromes.commonDementia.WebHome true waihonaSyndromes.commonDementia.library.WebHome
• waihonaSyndromes.rts.WebHome true waihonaSyndromes.rts.library.WebHome
• waihonaSyndromes.wbs.WebHome true waihonaSyndromes.wbs.library.WebHome
• waihonaSyndromes.as.WebHome true waihonaSyndromes.as.library.WebHome
• waihonaSyndromes.asd true 
• waihonaSyndromes.cdls.WebHome true cdlsPublications.WebHome
• waihonaSyndromes.crebbp_ep300 true 
• waihonaSyndromes.DownSyndrome true 
• waihonaSyndromes.kabuki.WebHome true waihonaSyndromes.kabuki.library.WebHome
• waihonaSyndromes.kleefstra true 
• waihonaSyndromes.malan true 
• waihonaSyndromes.mss.WebHome true waihonaSyndromes.mss.library.WebHome
• waihonaSyndromes.nbs.WebHome true 
• waihonaSyndromes.pierpont true 
• waihonaSyndromes.primrose true 
• waihonaSyndromes.pths.WebHome true waihonaSyndromes.pths.library.WebHome
• waihonaSyndromes.senw true 
• waihonaSyndromes.satb2 true 
• waihonaSyndromes.tsc.WebHome true waihonaSyndromes.tsc.library.WebHome
• waihonaSyndromes.wiedemannSteiner true 
• waihonaSyndromes.3q29 false 
• waihonaSyndromes.notSpecified.WebHome false waihonaSyndromes.notSpecified.library.WebHome
• waihonaSyndromes.commonDementia.WebHome false waihonaSyndromes.commonDementia.library.WebHome
• waihonaSyndromes.rts.WebHome false waihonaSyndromes.rts.library.WebHome
• waihonaSyndromes.wbs.WebHome false waihonaSyndromes.wbs.library.WebHome
• waihonaSyndromes.as.WebHome false waihonaSyndromes.as.library.WebHome
• waihonaSyndromes.asd false 
• waihonaSyndromes.cdls.WebHome false cdlsPublications.WebHome
• waihonaSyndromes.crebbp_ep300 false 
• waihonaSyndromes.DownSyndrome false 
• waihonaSyndromes.kabuki.WebHome false waihonaSyndromes.kabuki.library.WebHome
• waihonaSyndromes.kleefstra false 
• waihonaSyndromes.malan false 
• waihonaSyndromes.mss.WebHome false waihonaSyndromes.mss.library.WebHome
• waihonaSyndromes.nbs.WebHome false 
• waihonaSyndromes.pierpont false 
• waihonaSyndromes.primrose false 
• waihonaSyndromes.pths.WebHome false waihonaSyndromes.pths.library.WebHome
• waihonaSyndromes.senw false 
• waihonaSyndromes.satb2 false 
• waihonaSyndromes.tsc.WebHome false waihonaSyndromes.tsc.library.WebHome
• waihonaSyndromes.wiedemannSteiner false 

Our communities

Community

3q29 microdeletion syndrome

Community

Diagnose-overstijgend

Community

Dementie en verstandelijke beperking

Community

Rubinstein-Taybi syndrome

Community

Williams-Beuren syndrome

Community

Angelman Syndrome

Community

Autism Spectrum Disorder

Community

Cornelia de Lange syndrome

Community

CREBBP/EP300 Exon30/31

Community

Down Syndrome

Community

Kabuki Syndrome

Community

Kleefstra syndrome

Community

Malan syndrome

Community

Marshall-Smith syndrome

Community

Nicolaides–Baraitser syndrome

Community

Pierpont syndrome

Community

Primrose syndrome

Community

Pitt-Hopkins syndrome

Community

Syndrome van Sturge en Weber

Community

SATB2 syndrome

Community

Tubereuze Sclerose Complex

Community

Wiedemann-Steiner syndrome

Families or communities can have the need for more information, being able to share stories, ask questions and learn more about the condition.
Many are starting up by finding each other, to come togeter and seriously start collecting experiences, collect the questions (needs). We start by getting to know YOUR condition!

Would you like to have your condition supported