Comunità

alle numerose condizioni

Benvenuti nel nostro spazio dedicato alle persone care-intensive. WaihonaPedia risponde alle esigenze delle rare "persone ad alta intensità di cura" e delle loro famiglie, degli assistenti, degli insegnanti, dei medici e dei terapisti. Queste esigenze sono;

informazioni personalizzate basate sulle migliori informazioni disponibili e sulle esperienze degli altri,
connessione,
porre domande e ottenere risposte
pianificare la migliore qualità di vita possibile

Lo facciamo sostenendo le persone in relazione alle numerose condizioni che hanno avuto un impatto sulla vita di queste persone. Esplorate queste condizioni in modo da poter vedere e imparare, conoscere e condividere. Non riuscite a trovare la condizione che state cercando? Richiedi di essere supportato

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We support 'special needs' people

Welcome on our place especially for care-intensive people.
WaihonaPedia responds to the needs of rare 'care-intensive people’ and their families, caregivers, teachers, doctors and therapists. These needs are;

personalized information based on best available information and experiences of others,
connection,
asking questions and getting answers
plan for the best possible quality of life

We do this by supporting international communities for these people. Explore the communities that already joined below to ho you can see and learn, know and share together with one of our communities. Can't find the community you're looking for? Request this to be supported

waihonaSyndromes.3q29 true
waihonaSyndromes.commonDementia.WebHome true waihonaSyndromes.commonDementia.library.WebHome
waihonaSyndromes.rts.WebHome true waihonaSyndromes.rts.library.WebHome
waihonaSyndromes.wbs.WebHome true waihonaSyndromes.wbs.library.WebHome
waihonaSyndromes.common.WebHome true waihonaSyndromes.common.library.WebHome
waihonaSyndromes.as.WebHome true waihonaSyndromes.as.library.WebHome
waihonaSyndromes.asd true
waihonaSyndromes.cdls.WebHome true cdlsPublications.WebHome
waihonaSyndromes.crebbp_ep300 true
waihonaSyndromes.DownSyndrome true
waihonaSyndromes.kabuki.WebHome true waihonaSyndromes.kabuki.library.WebHome
waihonaSyndromes.kleefstra true
waihonaSyndromes.malan true
waihonaSyndromes.mss.WebHome true waihonaSyndromes.mss.library.WebHome
waihonaSyndromes.nbs.WebHome true
waihonaSyndromes.pierpont true
waihonaSyndromes.primrose true
waihonaSyndromes.pths.WebHome true waihonaSyndromes.pths.library.WebHome
waihonaSyndromes.senw true
waihonaSyndromes.satb2 true
waihonaSyndromes.tsc.WebHome true waihonaSyndromes.tsc.library.WebHome
waihonaSyndromes.wiedemannSteiner true
waihonaSyndromes.3q29 false
waihonaSyndromes.commonDementia.WebHome false waihonaSyndromes.commonDementia.library.WebHome
waihonaSyndromes.rts.WebHome false waihonaSyndromes.rts.library.WebHome
waihonaSyndromes.wbs.WebHome false waihonaSyndromes.wbs.library.WebHome
waihonaSyndromes.common.WebHome false waihonaSyndromes.common.library.WebHome
waihonaSyndromes.as.WebHome false waihonaSyndromes.as.library.WebHome
waihonaSyndromes.asd false
waihonaSyndromes.cdls.WebHome false cdlsPublications.WebHome
waihonaSyndromes.crebbp_ep300 false
waihonaSyndromes.DownSyndrome false
waihonaSyndromes.kabuki.WebHome false waihonaSyndromes.kabuki.library.WebHome
waihonaSyndromes.kleefstra false
waihonaSyndromes.malan false
waihonaSyndromes.mss.WebHome false waihonaSyndromes.mss.library.WebHome
waihonaSyndromes.nbs.WebHome false
waihonaSyndromes.pierpont false
waihonaSyndromes.primrose false
waihonaSyndromes.pths.WebHome false waihonaSyndromes.pths.library.WebHome
waihonaSyndromes.senw false
waihonaSyndromes.satb2 false
waihonaSyndromes.tsc.WebHome false waihonaSyndromes.tsc.library.WebHome
waihonaSyndromes.wiedemannSteiner false

alle numerose condizioni

We support 'special needs' people

Le nostre comunità

3q29 microdeletion syndrome

Dementie en verstandelijke beperking

Rubinstein-Taybi syndrome

La sindrome di Williams-Beuren

Zeldzame aandoeningen in het algemeen

Angelman Syndrome

Autism Spectrum Disorder

Cornelia de Lange syndrome

CREBBP/EP300 Exon30/31

Down Syndrome

Kabuki Syndroom

Kleefstra syndrome

Malan syndrome

Marshall-Smith syndrome

Nicolaides–Baraitser syndrome

Pierpont syndrome

Primrose syndrome

Pitt-Hopkins syndrome

Syndrome van Sturge en Weber

SATB2 syndrome

Tubereuze Sclerose Complex

Wiedemann-Steiner syndrome

Iniziamo a conoscere la TUA condizione!