Share your stories
Stories are written for and by people around Angelman Syndrome, so we know what we are talking about. We listen to all the stories, write them down and share them. And translate relevant news about Angelman Syndrome into readable articles. In this way we want to connect families, let them laugh and relax or give them just that little bit of support.
Because if there is something important for families with a care-intensive person like Angelman Syndrome, it is that the family remain upright. And that is what we, as community around Angelman Syndrome, are committed to doing with heart and soul.
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Angelman syndrome is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.
